Have you already looked at this page?
https://www.ssothealth.org/solutionsHere's a little demonstration of how the app should work.
It is good to see how different people can be granted access to the data and also withdrawn. Everything looks very good already
It looks like they have thought of lots of solutions to help patients manage their own medical data. I also like that they are looking into providing pharma solutions this is where there is a lot of money in the markets.