Dear yahoo62278,
I wasn't aware of this thread until someone pointe me here.
I have been trough some difficult times recently, but nothing comparing to this.
I have no medical knowledge to fully understand your condition, but what I can say is that being part of this community I feel obliged to support you.

First thing I learnt, Is keeping in mind your advice: be responsible with our body, take care of it and don't underestimate the effort needed to keep it running.

Second thing, let us know in the OP how we can be helpful to you.