Do patients really want this responsibility? Someone asked the question? Is the blockchain accessible to the father or mother who wants to manage the health of his children? To the senior (the main user of the health care system)?
Not all patients want the responsibility of their health data. But we focus on patients with rare diseases and unmet medical needs. Working with advocacy groups such as cysticfibrosis.com, we surveyed their users. 98% want to own their data and share it along their own terms. More than half are interested in receiving compensation. The PatientTruth app is also accesible to caregivers (e.g., parents) and anyone who the patient chooses to share his data with (e.g., doctor) with consent built-in the blockchain
I am interested to observe various updates in this project. there are constantly various positive changes. I think, this is a good indicator of project quality.
We try our best to be as much transparent as possible
Today, while our CEO Robert Chu and our CPO Nicolas Schmidt will share their expertise at IEEE Standards Association "#Blockchain for Clinical Trials" seminar in Glascow, our Manager Vincent Galand will debate about #health #data value & ownership in Amiens with Anca Petre, founder of 23 Consulting, Françoise Benon, President of Patient Advocacy Group France AVC (stroke), Isabelle Hilali, General Manager of CRI and beatrice Falise Mirat of Care Insight !
Great conference. So if I put my health records on patientTruth, it's a truly decentralized health record, and I actually own my data?
Yes and soon we will create a marketplace where these datas will be trade between you and pharmaceuticals companies for example.
Our actual and future partnerships with medical company are very important because they will create the demand on our marketplace, soon you will be able to offer this health record to them and get money from it
Great stuff. What pharma partnerships do you have running?
For the moment we have signed a partnership with Laboratoires Pierre Fabre, one of the biggest pharmaceutical company in Europe ! And we will soon announce another partnership
#conV2X : Robert CHU and John HALAMKA (our advisor) sharing learnings out of the public launch of Embleema Health Network at the "Converge2Accelerate" Healthcare conference at Columbia University in New York.
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Re: [TRANSLATION] Chinese and Russian - Embleema |Product ✅/Pharma Partnerships ✅
Here is a short interview made during the Embleema's ICO launch night in Paris few weeks ago with :
Bernard HAMELIN, Global Head of Medical Evidence Generation @ SANOFI S.A
Sanofi S.A. is a French multinational pharmaceutical company headquartered in Paris, France, as of 2013 the world's fifth-largest by prescription sales. The company was formed as Sanofi-Aventis in 2004 by the merger of Aventis and Sanofi-Synthélabo, which were each the product of several previous mergers. It changed its name to Sanofi in May 2011. The company is a component of the Euro Stoxx 50 stock market index, and generating 33.821 billion USD$ in 2016